Relative and carer

To me, Psychosis seems to be a loss of connection to reality. When my daughter had psychosis, she did not seem like the person I knew. It was very disturbing for the family to watch and feel helpless.

It took a high dose of anti-psychotic meds to enable her to work, but the meds also made her sleep longer and eat more. Her weight gain affected her confidence in public.

Part-time or casual work was all she could manage which has affected her financial situation.

It was difficult to compete with something that did not respond to logic. The best we could do was to offer an alternative to what the ‘voices’ were saying. It was very draining for my daughter and for the family. My primary focus was keeping my daughter safe from suicide.

Psychosis affected our ability to work initially. I worked full-time as a secondary teacher but after the diagnosis, I felt I had lost my daughter when she was in psychosis. During this time I was unable to work for fear of her hurting herself.

We moved to Brisbane for a fresh start, with no work to go to. This gave the family time to get to know the mental health system.  Later, when my daughter was out of psychosis, we were able to work again.

It goes without saying that MORE research funding is ESSENTIAL. Once out of psychosis, people like my daughter have a great deal to offer society and to gain from being properly supported by a more knowledgeable community. I have learned that with the correct levels of appropriate medication and cognitive therapy, psychosis does NOT have to be a permanent diagnosis.

Lived Experience